We got our wagon ride

We finally got our wagon ride. On Tuesday they were talking about moving us to a different floor or there was even talk about moving us back to Wolfsons hospital.We wanted to make sure before we got moved that Garet got his wagon ride. We could not find any wagons on our floor so I had to go and find one on another floor. After sanitizing it and getting blanket put in the bottom we were ready for the ride. At first Garet was not so sure what was going on, but as soon as we started to move he thought it was to cool. One of our favorite nurses (Trisha) made sure we had everything we needed. She got Garet hooked up to a portable heart monitor and off we went. Trisha was our driver and she did a very good job. We did about 3 laps around the PICU. On the first 2 laps he was smiling at everyone we would pass. By the middle of lap 3 he was fast asleep.
We really have to make sure that once we get home we get Garet a wagon. He will be able to help daddy in the yard in his wagon. He really seems to like it and that would be a fun way to get him around the yard. We will have to make sure it has some big wheels since out yard and road are mostly dirt.

Onto our move. Like I said above they were looking at moving us to another floor or maybe even back over to Wolfsons. Well we made sure they knew we wanted to stay at Shands. We felt that Garet will continue to get the best care if we stay at Shands. All the doctors know him and it did not make much sense to us to go back to Wolfsons. So we have now moved to the 4th floor. We will miss all of the friends we have made in the PICU, but we are very happy to still be at Shands. It is a step down room and hopefully our final step before getting to go home. It is hard to go from all the personal care that Garet was getting in the PICU to a normal Pediatric floor. He is still getting wonderful care we just don't see the nurses as much so we do not have that close relationship with them that we have with the nurses up in the PICU. The main Cardiologist was wanting Garet to have his own room in the ped unit but there is only 4 rooms that are private on that floor and from the sound of it they do not open up very often. No big deal. We have a little girls for a room mate. She is also a transplant patient. So they both have the same precautions that the doctors and nurses have to take. The doctors are suppose to meet some time today and try to put together a action plan and time line on how much longer we will have to be at the hospital. Please continue with all of your prayers, we would really like to be home some time in the next couple of weeks. If they could send up home with a portable heart monitor then we could be doing the same thing at home that we are doing at the hospital right now. He is doing a great job of taking all of his medicine. He is such a big boy when it comes to that. There is only one more med that they have to start having him take by mouth and that is the one that makes him pee a lot. They are still changing the doses a little bit on some of the other meds, trying to find the exact amount that will work best for his little body. Well as soon as we hear anything about when we might get to come home you all will be the first to know.