We are a champion burper now. Garet has been eating about 4 ounces at most of his feedings. Since he is eating so much at one time now we really have to make sure that we burp him well or everything he eats comes back up at the end of the feeding. Below shows grandma Rose burping the big man. He is doing a really good job of holding his head up on his own. He just needs some help sitting up. He is getting so big so fast.
Garet has decided that he does not like to have his blanket on him very much anymore so we have started to put some little clothes on him so he only has to have his blanket on his legs. We took some of his onsies and cut the bottom snap part off so that it is just a long shirt. We had a little white hospital one on him but it was so short that it really just covered his chest and his belly hung out the bottom.
The doctors are saying that his lung seems to be getting better. The last couple of x-rays that they have done show that he has some good air flow threw both lungs. His heart on the other hand is still not doing so well. The pumping function is still in the non measurable area, but they are saying that it is in the higher part of the unmeasurable. It is confusing. To me it sounds like it is some what measurable. We want his pumping to be up around 70. Anything under 30 is considered unmeasurable. When we cam in is was consistently below 20. Now the past couple have started to show a little improvement and it sounds like he is staying in the low 20's right now. Once he gets up in the 30's then they will consider that improvement. But the doctors say that we should not go by the numbers alone. The fact that he is eating and is pink and is staying awake a lot is much better to look at than any number a machine can pop out for us. Right now we just need him to keep eating and growing. The doctors say that as long as he keeps growing then we will continue to look up. He is measuring 22 1/2 inches long and weights right close to 9.5 pounds. Since he is eating so well and seems to be gaining weight our status on the transplant list has moved down. That is good because it means that he is not in the critical stage of we need a heart right now. Everything right now is looking good. He is now down to only 2 IV drips. The only part of him that has things hanging off is his left foot. His arms and right leg are free to move as they please.
I know that most of you know who we are. But there are a lot of people that we are hearing from all over the place that we have never met. Above it our most recent family picture. We want to make sure that everyone knows how much we really appreciate all the prayers that have been coming our way. It has really helped with Garets health and with keeping our attitude positive. Everyone that has helped us in any other way we thank you so much as well. There are to many of you to name but thank you to everyone. We hope to have more good news to come. Our hope is that we get to take Garet home some time soon and continue to get him better from the house.
Garet has decided that he does not like to have his blanket on him very much anymore so we have started to put some little clothes on him so he only has to have his blanket on his legs. We took some of his onsies and cut the bottom snap part off so that it is just a long shirt. We had a little white hospital one on him but it was so short that it really just covered his chest and his belly hung out the bottom.
The doctors are saying that his lung seems to be getting better. The last couple of x-rays that they have done show that he has some good air flow threw both lungs. His heart on the other hand is still not doing so well. The pumping function is still in the non measurable area, but they are saying that it is in the higher part of the unmeasurable. It is confusing. To me it sounds like it is some what measurable. We want his pumping to be up around 70. Anything under 30 is considered unmeasurable. When we cam in is was consistently below 20. Now the past couple have started to show a little improvement and it sounds like he is staying in the low 20's right now. Once he gets up in the 30's then they will consider that improvement. But the doctors say that we should not go by the numbers alone. The fact that he is eating and is pink and is staying awake a lot is much better to look at than any number a machine can pop out for us. Right now we just need him to keep eating and growing. The doctors say that as long as he keeps growing then we will continue to look up. He is measuring 22 1/2 inches long and weights right close to 9.5 pounds. Since he is eating so well and seems to be gaining weight our status on the transplant list has moved down. That is good because it means that he is not in the critical stage of we need a heart right now. Everything right now is looking good. He is now down to only 2 IV drips. The only part of him that has things hanging off is his left foot. His arms and right leg are free to move as they please.
I know that most of you know who we are. But there are a lot of people that we are hearing from all over the place that we have never met. Above it our most recent family picture. We want to make sure that everyone knows how much we really appreciate all the prayers that have been coming our way. It has really helped with Garets health and with keeping our attitude positive. Everyone that has helped us in any other way we thank you so much as well. There are to many of you to name but thank you to everyone. We hope to have more good news to come. Our hope is that we get to take Garet home some time soon and continue to get him better from the house.
such good news!!!
ReplyDeletealways in our prayers
My husband and I are praying for your sweet baby. Also you and your husband are in our prayers. My dad is a retired Methodist minister and passed along your blog to me. (I am not sure if he actually knows Garet's grandpa in Taylorville.) Our family also has a blog, so I will link you to ours and ask everyone to pray for your sweet son.
ReplyDeleteWhat good news and he does look so good! (I am Tara's friend from her church/MOPS group.)
ReplyDelete