Tuesday, May 26, 2009

We love our food

We have now been able to eat out of the bottle for the past 4 or 5 feeding. We are eating about 2 ounces every 2 to 3 hours. We would probable eat more if they would let us but our tummy has to get used to having that much food in it at one time.
Today we signed the papers to get him put on the transplant list. This does not mean that we will have to have one but the longer you are on the list the better our chances of getting a good match. They have also told us that if he does need a new heart they will try to maintain his little heart as long as they can with medicine to try to get him as old as we can before doing the transplant. The older he is the easier it will be to find him a heart. The bigger and stronger he is means that he can take a bigger heart if one come up. Right now with his size he could take up to about a 1 year old heart. So if we can maintain him with medicine for a couple more months then he will be able to take a even bigger heart if he needs to. This morning they started to give Garet a couple of his medicines by mouth instead of my IV's. Since he is keeping food down and not having to struggle to much to do so. The next step is to get as much of the medicine by mouth the better. They start to do this so if there is a chance that we can go home while waiting for a new heart if we need one then we can. We have also had some nice big full diapers which is good as well. I know you all wanted to know about the poo.
Daddy had to go back to work today since the rain has let up. It is hard to not have him here with us all day. We know it is hard on him as well having to be at work while we are here. I have to go back to work in a week or so. I know I will have a hard time as well going back to work but some of our normal life has to go on while we are going threw this. We are very lucky to have Grandma Rose here in town so Mommy and Daddy can go back to work and there is still someone here to sit with Garet. We have had a wonderful family support threw all of this. Ganny Babs is making sure that we are all fed well to keep our energy. Everyone has been so great is helping in any way they can. Thank you so much to everyone.
The doctors say that the left lung still looks a little flat but there is some air moving threw it and there is no fluid on the lung so we just have to keep his left side up as much as we can. Garets heart is still not pumping very well but they are able to get it under some control with medicine. It is still not any were close to what it needs to be but we will take that right now. He will have to be on this medicine for a long time. That is one of the medicines they are starting to give by mouth. If they can get him to start taking his medicine threw his mouth and we can get rid of all of the IV's then we will able to hold him. He may also be able to sit in his swing and bouncy seat. Well it has been a good couple of days. We really hope and pray that we continue to have these good days and then number of bad or scary days keeps going down.

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