Our little fits

The past day or so it has been a battle to see what kind of breathing assistance is best for our little Garet. They took him off the ventilator on Friday and put him on just oxygen threw a little nose piece. Then they found out that his left lung has partially collapsed so they put him on a CAP or CPAP or something like that. He did not mind that to much. Then they decided that the CPAP machine they had him was not strong enough for how much he weighed so they put him on a bigger machine. Doing that they had to change the thing that went over his nose. They had to switch it to a piece that went in his nose to help get the air into his lungs better. Well he did not like that one at all. Mostly he did not like that one because he could not see anything with it on. He had two big plastic tubes on both sides of his head and big rubber things up his nose. So any time he was awake he would throw one of his fits. Well that would cause his blood pressure to go up and his heart rate to stay elevated. So they only left him on that over night trying to get his lung to puff back up. Now they have put him back on just the oxygen with the small nose piece. He is much happier with that on and it is keeping his heart rate a little lower. His lung is still not as good as they would like to see it but they are more worried about the heart rate and making the heart work to hard. They come in about every 2 hours and thump on the left side of his body with a plastic little mallet. It sounds really bad but does not hurt him. It is used to try to break up any fluid in the lung and try to get it out. Having the big nose thing in over night must have helped with the collapsed lung or they would not have put him back on the little oxygen.

I hope you were all able to follow all of that. Basically on Friday they took him off the ventilator and put the little nose piece in. The for the next couple days they made him mad and now his back on the little nose piece. I guess that would have been the easiest way to tell you. If his oxygen levels stay up and his lung gets a little bit better than tomorrow we should be able to start bottle feeding him again. Right now they are feeding him formula threw an IV. So at least his tummy gets to feel full.

We hope everyone is having a good holiday weekend. It is amazing how a college town gets very slow on a holiday weekend. We went to get breakfast and there was no one on the road. It was nice. Normally when we take the elevator down to the lobby we have to stop at about every level to let people on. This morning we made it clear from the 10th floor to the lobby with no stops.

Thank you so everyone who has came to visit and called to see how everything is going. We are hanging in there and trying to stay positive.