It is a pretty nasty day here today in Gainsville. It is rainy and kind of gray outside. But we are still staying stable inside and trying to stay posative. Today they are not trying much of anything we. They are going to slowly take Garet off of the medacine that is helping him pee and see if his little body will contiue to pee without the assistance of that medacine. They are also going to start to give him a little more food. Right now they just have him on some of the basic nutirents that he needs and also still the protien.
We are still on the schedule now for the Cardio Cathetor on Thursday and we have hoping that that will be first thing in the morning. This procedure is what we are going to be looking to for answers. Right now it is the only thing that any of the doctors think will give us a little bit more information on what our corrective action will be.
A lot of the poeple from the transplant end of things have been in and out talking with us. They have been doing a great job in letting us know what may happen and making sure we have all the paper work in order so we can move fast if we have to the way of transplant. It also looks like they are planning for us to be here for quite a while. We kind of already knew that but now they are talking to us about more long term living arangments here in Gainsville. I guess after we are here for a while the Ronald McDonald house will have to leave for a couple days and you have to get back on the list to get back in there. So our social worker is looking at other option we may have. I guess they have a coupld apartments here in town and we can apply for grants that will assist in the payment for that and in those cases we can stay there form up to 6 months if needed.
There is just so much paperwork that we are having to do. For both medical and other. I feel like I should get a stamp made with my signature on it for all the stuff that needs to be signed. I am just joking of course but it would be nice. Well we have more doctors coming in so I will be back later.
Tuesday, May 19, 2009
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