The doctor just came in to talk to us about the Catheter test that they just did. It was kind of a good news bad news kind of thing. They were unable to find any abnormalities in the heart that they can go in and fix. So we are pretty much at the same place a we were before. We now have to wait and see what his little body wants to do. We are now playing an even longer waiting game. We have to wait and see if his heart starts to get better over time or if he gets worse than we start to strongly look at the transplant option. So I guess we got some answers in one way but now we have to wait again. The genetic tests should be back in a couple weeks and maybe that will shed some more light on the subject. Other than those tests it is completely up to God to give us the answers.
Last night was a rough night. He decided that he did not want to go to sleep. At about 12:00 he decided that he was going to throw one of his fits. Finally by about 2 in the morning we were able to lay down and get a little bit of sleep.
Tomorrow is sounds like they may try to remove his breathing tube and see how we do without that. Since he has been so awake the past couple of days they seem to think that he will be less agitated if they take out the breathing tube. I am really not sure what to think about that. He has been doing a lot of his breathing on his own with just a little bit of assistance from the ventilator. Since we put him on it voluntarily to give his heart a break I am sure he will be good when they take him off but it is just a little scary. Now we are not for sure that this will happen tomorrow but that is what we are hearing.
Well I wish I had more to tell after the test today, but that is all that I have for right now. I will talk to you all again in the morning.
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