We met a new nurse today, her name is Paula and she is so nice. You will notice in the picture below that a few things are missing. First of all they took the big sticker thing on our head off. Yeah we can see our entire Garet face. Also on his left arm he had a big IV line it almost looked like a little cast on his arm. With that on he could not use his left arm since they had to have it restrained to the bed. Well they took that off this morning as well. So now both of our arms are free. That makes Garet very happy but that means that anything that is on his body has to be taped down because he knows that if he pulls on it they will come off. That is why he has the big pieces of tape on his face. He has learned how to pull the little air thing on his nose and get it out.
The next exciting thing is that I got to hold Garet and feed him a bottle. We have been able to feed him now for the past day or so, but this is the first time since we were admitted to the PICU at Wolfsens that I have been able to hold our little man. He is off enough IV's and off enough of the other machines that we were able to unhook him and pick him up and move to a chair for about an hour. It was so nice. I have been trying to put the cutest pictures on here to show you all how happy he can be. Today he had a big feeding and needed to burp, but he did not think it was such a good idea. So below is one of his mad pouty faces. He was telling me threw his eyes that he did not like what we were doing. So right now we just wait some more and see how Garets heart and body do while they continue to take him off more of the different medicines. We also have to see how he does taking the medicine by mouth. Whey we took him out of bed to hold him the weighed him. He is 9.5 pounds. He has only lost one half of a pound since he has been in here. So now we are working on getting the weight back on him. He really loves to eat so I don't think we will have any trouble doing that. Thank you all for the prayers that you have been sending our way, it seems that they are all helping a lot. We are still not out of the woods yet but it is nice to see him getting a little better. His heart is still having a hard time but they are working on helping that with medicine. We are still praying that we do not have to have a heart transplant, but that is still a very real possibility. Only time will tell what will happen next.
Wednesday, May 27, 2009
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Your cousin Amanda sent me the link to your blog. I have been following it for a little while now. I am so glad that you have gotten to hold him again. I am sure that you feel so helpless at times and just to have the ability to physically comfort him must be such a comfort to you. I will continue to pray and follow your story.
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